Page 30 - CIBERER-2015-eng

Transversal Programmes
Scientific-Social Dissemination Programme
Through its scientific-social dissemination pro- gramme, CIBERER gives society an ongoing pres- entation of the work done by its research groups, its projects, the diseases which are being worked on and the new knowledge generated.
CIBERER has worked hard to turn its web page (www.ciberer.es) into an effective instrument. This is shown by the Scopus ranking, which plac-
• In March, the International Symposium on he- reditary hearing imparment was held in Madrid. in cooperation with the Fundación Ramón Are- ces de Madrid.
• The 8th Annual Meeting of the CIBERER, where over 200 members of the thematic area pre- sented the progress made in translational re- search in RD in San Lorenzo de El Escorial in
es it as one of the most important scientific web pages.
Mention should also be given to the issue of CI- BERER’s newsletter, a highly effective publication which both publicises the research work done in Rare Diseases (RD) by CIBERER and also sends all the information of interest on RD to the re- searchers contracted by and attached to our In- stitution. In 2015, knowledge of the different par- ties involved was improved and cooperation has been enhanced by means of the eight scientific and six social newsletters issued.
Lastly, CIBERER arranged several encounters for outreach to people affected over the year, some examples of which are given below:
• In February researchers and people affected presented their cooperation in different rare diseases at the Investigar es Avanzar (Re- search means Progress) events in Valencia.
March.
• In May, CIBERER organised an encounter to tackle the current situation of Centros de Ex- pertos y Redes de Referencia en ER in Madrid.
• The CIBERER supported the Intenational Sym- posium on rare endocrine diseases in Madrid in October.
CIBERER also co-organised an exhibition on the research into “Less rare” rare diseases which was shown at the Hospital Universitari Vall d’Hebron, La Fe Hospital in Valencia and Reina Sofía Hospi- tal in Cordoba over the year.
Lastly, CIBERER had 1141 impacts in the media. This indicator clearly shows that it has become a social reference in the field of research into Rare Diseases.
30 I Annual report 2015 I CIBERER