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ORGANISATIONAL STRUCTURE
The CIBERER is formed by 60 Research groups, belonging to numerous types of institutions: University Hospi- tals, Universities, Public Research Bodies, such as the Instituto de Salud Carlos III (ISCIII), the Consejo Superior de Investigación Científica (CSIC) and the Centro de Investigaciones Energéticas, Medioambientales y Tecnoló- gicas (CIEMAT), and Spanish Region Research Centres . Each of these groups is a CIBERER unit .
CIBERER comprises a large team consisting of over 700 people, many of whom are CIBERER staff researchers, and the rest are members of the groups as staff attached to the CIBERER . This team consists of basic and clinical biomedical researchers, research technicians and management staff .
As a public consortium, CIBERER is governed by a Governing Board and a Permanent Commission (administra- tion and steering bodies) in which the 29 Institutions belonging to the CIBERER participate . The organisational structure consists of Scientific Management under Dr . Francesc Palau which, together with a Steering Commit- tee, coordinates the activity of the 7 research programmes (RPs) into which the CIBERER groups are distributed . The CIBER Management Office offers the administrative support necessary for operation of the Institution .
Scientific Director
Scientific Assistant Director
Medical Programmes
Training Programme
Steering Committee
Research Programme Coordinators
Genetic Medicine
Inherited Metabolic Medicine
Mitochondrial and Neuromuscular Medicine
Paediatric and Developmental Medicine
Sensorineural Pathology
Endocrine Medicine
Hereditary Cancer and Related Syndromes
Training Programme
Dr . Francesc Palau
Dr . José María Millán
Dr . Guillermo Antiñolo
Dra . Antonia Ribes
Dr . Miguel A . Martín
Dr . Pablo Lapunzina
Dra . Carmen Ayuso
Dra . Susan Webb
Dr . Jordi Surrallés
Dr . Luis Pérez Jurado
The External Scientific Advisory Committee of each of the subject areas, in this case Rare Diseases, provides general scientific support and advice to the Board of Trustees . It consists of internationally renowned scientists in the health sciences field who stand out in their professional or scientific careers aligned with CIBERER objectives .
External Scientific Advisory Committee (ESAC)
President
Member of ESAC
Dr . Josep Torrent Farnell
Dra . Ségolène Aymé
Dr . Jean-Jacques Cassiman
Dr . Jean-Marie Saudubray
Dra . Ma Rita Passos-Bueno
Fundació Dr . Robert, Univ . Aut . de Barcelona
Inst . de la Santé et Recherche Médicale, Paris
Catholic University of Leuven, Bélgica
Hôpital Pitié-Salpêtrière, Paris
C . de Estudos do Genoma Humano, São Paulo
The External Scientific Advisory Committee is responsible for advising in relation to scientific policy and institutional relations guidelines, examining and reporting on the proposal for the Strategic Plan, Annual Scientific Reports and Annual Action Plans, reporting on the suitability of programmes, resources and capa- bilities for consortium purposes, advising with regard to the transfer strategy, the policy for hiring scientific staff and for reporting on the creation of research programmes .
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